ISSN 2097-6046（网络）
ISSN 2096-7446（印刷）
CN 10-1655/R
主管：中国科学技术协会
主办：中华护理学会
中华急危重症护理杂志

中华急危重症护理杂志 ›› 2026, Vol. 7 ›› Issue (10): 1164-1170.doi: 10.3761/j.issn.2096-7446.2026.10.002

• 论著 • 上一篇    下一篇

脊柱退变性疾病术后深静脉血栓形成患者自我管理的用户画像研究

韩丽1(), 周丹1, 齐思语2, 时长芳1, 刘美子1, 汤迟1, 赵爱平1, 王荣环1, 祝凯1,*()   

  1. 1 青岛大学附属医院脊柱外科 青岛市 266035
    2 西安美术学院建筑环境艺术系 西安市 710699
  • 收稿日期:2025-10-30 出版日期:2026-10-10 发布日期:2026-10-14
  • 通讯作者: *祝凯，E-mail：ZKNL1210@163.com
  • 作者简介:韩丽：女，硕士，主管护师，E-mail：hanli66606@126.com
    作者贡献声明

    韩丽：研究设计、资料收集、论文撰写；周丹、刘美子、汤迟：数据整理、统计学分析；齐思语、时长芳：患者自我管理画像呈现；赵爱平、王荣环：论文修改、方法学指导；祝凯：研究指导、论文审阅、经费支持

  • 基金资助:
    山东省医药卫生科技项目(202314021671)

Research on the construction of user profiles for self-management behaviors of patients with postoperative deep vein thrombosis after spinal degeneration

HAN Li1(), ZHOU Dan1, QI Siyu2, SHI Changfang1, LIU Meizi1, TANG Chi1, ZHAO Aiping1, WANG Ronghuan1, ZHU Kai1,*()   

  1. 1 Spine Surgery， the Affiliated Hospital of Qingdao University， Qingdao 266035， China
    2 Department of Architectural Environment Art， Xi’an Academy of Fine Arts， Xi’an 710699， China
  • Received:2025-10-30 Online:2026-10-10 Published:2026-10-14
  • Contact: *ZHU Kai，E-mail：ZKNL1210@163.com
  • Supported by:
    Shandong Provincial Medical and Health Science and Technology Project(202314021671)

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摘要：

目的 基于用户画像技术探索脊柱退变性疾病术后深静脉血栓形成患者自我管理行为的不同类型，为精准化干预方案的设计提供依据。 方法 采用目的抽样法选取23例脊柱退变性疾病术后深静脉血栓患者进行半结构式访谈。采用NVivo 12.0软件进行资料管理和编码，结合Colaizzi七步分析法进行资料分析和主题提取，手动提取脊柱退变性疾病术后深静脉血栓形成患者自我管理行为特征，并以人物图像结合用户标签的综合形式实现患者自我管理画像的可视化。 结果 脊柱退变性疾病术后深静脉血栓患者自我管理画像的标签归纳为疾病认知与信息需求、风险感知与行为决策、自我管理的多维障碍、多元化的应对策略与支持需求、心理情绪的双向响应5个维度；其自我管理画像类型包括认知薄弱与行为懈怠型、积极寻求健康管理合作型、心理脆弱与行为依赖型、意愿强烈但资源匮乏型、盲目乐观与风险淡漠型5类。 结论 脊柱退变性疾病术后深静脉血栓形成患者自我管理画像具有群体异质性，应根据患者的不同类型提供精准化、个性化的干预策略。

关键词: 脊柱退变性疾病, 深静脉血栓形成, 自我管理, 用户画像, 质性研究

Abstract:

Objective To explore the different types of self-management behaviors of patients with postoperative deep vein thrombosis after spinal degenerative diseases based on user profiling technology，thereby providing the basis for the design of precise intervention plans. Methods The purposive sampling method was used to select 23 patients with postoperative deep vein thrombosis due to spinal degenerative diseases for semi-structured interviews. The data were managed and coded using NVivo 12.0 software，and analyzed along with theme extraction through Colaizzi’s seven-step analysis method. The self-management behavior characteristics of patients with deep vein thrombosis after spinal degenerative disease surgery were manually extracted，and the patient self-management personas were visualized in a comprehensive form combining character images and user tags. Results The patient self-management persona tags for self-management of patients with postoperative deep vein thrombosis due to spinal degenerative diseases can be summarized into five dimensions：disease cognition and information needs，risk perception and behavioral decisions，multiple barriers to self-management，diversified coping strategies and support needs，and bidirectional responses in terms of psychological emotions. The types of patient self-management personas include five categories：those with weak cognition and lack of motivation，those actively seeking health management cooperation，those with psychological vulnerability and behavioral dependence，those with strong will but limited resources，and those who are blindly optimistic and indifferent to risks. Conclusion The self-management personas of patients with postoperative deep vein thrombosis after spinal degenerative diseases exhibit group heterogeneity. Therefore，precise and personalized intervention strategies should be provided based on the different profiles of each patient.

Key words: Spinal Degenerative Diseases, Deep Vein Thrombosis, Self-Management, User Personas, Qualitative Research