[1] 李莲,王金宁,陈臣侃,等. 护士主导的移动体外膜肺氧合患者区域转运标准化流程的构建及应用[J]. 中华护理杂志,2023, 58(17):2053-2058. Li L,Wang JN,Chen CK,et al.Construction and application of standardized process for regional transport of mobile extra-corporeal membrane oxygenation patients led by nurses[J]. Chin J Nurs,2023,58(17):2053-2058. [2] Extracorporeal Membrane Oxygenation.ELSO live registry dash-board of ECMO patient data[EB/OL].[2024-02-06].https://www.elso.org/registry/elsoliveregistrydashboard.aspx. [3] 赵本利,周家梅,张婷,等. 成人心脏移植受者健康相关生活质量的研究进展[J]. 中华现代护理杂志,2023,29(12):1541-1547. Zhao BL,Zhou JM,Zhang T,et al.Advances in research on health-related quality of life in adult heart transplant recipients[J]. Chin J Mod Nurs,2023,29(12):1541-1547. [4] Wilson IB,Cleary PD.Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes[J]. JAMA,1995,273(1):59-65. [5] Ortoleva J,Dalia AA.Long-term outcomes are important:extra-corporeal membrane oxygenation for COVID-19[J]. J Cardiotho-rac Vasc Anesth,2021,35(7):2007-2008. [6] 史钊,窦蕾,李顺平. 国内外患者报告结局的应用现状与研究进展[J]. 中国全科医学,2023,26(4):401-408. Shi Z,Dou L,Li SP.Patient-reported outcome:recent advances in applications and research at home and abroad[J]. Chin Gen Pract,2023,26(4):401-408. [7] Wilcox ME,Jaramillo-Rocha V,Hodgson C,et al.Long-term quality of life after extracorporeal membrane oxygenation in ARDS survivors:systematic review and meta-analysis[J]. J Inten-sive Care Med,2020,35(3):233-243. [8] Schoenrath F,Hoch D,Maisano F,et al.Survival,quality of life and impact of right heart failure in patients with acute cardiogenic shock treated with ECMO[J]. Heart Lung,2016,45(5):409-415. [9] Schmidt M,Zogheib E,Rozé H,et al.The PRESERVE mortality risk score and analysis of long-term outcomes after extra-corporeal membrane oxygenation for severe acute respiratory distress syndrome[J]. Intensive Care Med,2013,39(10):1704-1713. [10] Unai S,Yamane K,Tanaka D,et al.Quality of life and mid-term survival of patients bridged with extracorporeal mem-brane oxygenation to left ventricular assist device[J]. ASAIO J,2017,63(3):273-278. [11] Gallagher AM,Lucas R,Cowie MR.Assessing health-related quality of life in heart failure patients attending an outpa-tient clinic:a pragmatic approach[J]. ESC Heart Fail,2019,6(1):3-9. [12] Kanji HD,Chouldechova A,Harris-Fox S,et al.Quality of life and functional status of patients treated with venovenous extracorporeal membrane oxygenation at 6 months[J]. J Crit Care,2021,66:26-30. [13] Sylvestre A,Adda M,Maltese F,et al.Long-term neurocog-nitive outcome is not worsened by of the use of venovenous ECMO in severe ARDS patients[J]. Ann Intensive Care,2019, 9(1):82. [14] Grasselli G,Scaravilli V,Tubiolo D,et al.Quality of life and lung function in survivors of extracorporeal membrane oxygenation for acute respiratory distress syndrome[J]. Anesthe-siology,2019,130(4):572-580. [15] O'Brien SG,Carton EG,Fealy GM. Long-term health-related quality of life after venovenous extracorporeal membrane oxygenation[J]. ASAIO J,2020,66(5):580-585. [16] Wang ZY,Li T,Wang CT,et al.Assessment of 1-year out-comes in survivors of severe acute respiratory distress syndrome receiving extracorporeal membrane oxygenation or mechanical ventilation:a prospective observational study[J]. Chin Med J,2017,130(10):1161-1168. [17] Dennis M,Southwood TJ,Oliver M,et al.Extracorporeal mem-brane oxygenation and Extracorporeal Membrane Oxygenation Cardiopulmonary Resusciation(ECPR) research priorities in Australia:a clinician survey[J]. Aust Crit Care,2023,36(5):828-831. [18] Knudson KA,Gustafson CM,Sadler LS,et al.Long-term health-related quality of life of adult patients treated with extracor-poreal membrane oxygenation(ECMO):an integrative review[J]. Heart Lung,2019,48(6):538-552. [19] Savas H,Ozdemir Koken Z,Senol Celik S.Experiences of adult extracorporeal membrane oxygenation patients following discharge:a mixed methods study[J]. Heart Lung,2020,49(5):592-598. [20] Immohr MB,Eschlböck SM,Rellecke P,et al.The quality of afterlife:surviving extracorporeal life support after therapy-refractory circulatory failure-a comprehensive follow-up analy-sis[J]. ESC Heart Fail,2021,8(6):4968-4975. [21] Ko Y,Cho YH,Park YH,et al.Feasibility and safety of early physical therapy and active mobilization for patients on extracorporeal membrane oxygenation[J]. ASAIO J,2015,61(5):564-568. [22] 曾妃,郑叶平,吴文英. 静脉-静脉体外膜肺氧合患者早期活动的实施及护理[J]. 中华急危重症护理杂志,2020,1(6):506-508. Zeng F,Zheng YP,Wu WY.Implementation and nursing care of early mobilization in patients with venous-venous extracor-poreal membrane oxygenation[J]. Chin J Emerg Crit Care Nurs,2020,1(6):506-508. [23] 戴伟英,庄一渝. 动脉-静脉体外膜肺氧合治疗病人下肢缺血护理清单的设计及应用[J]. 护理研究,2022,36(8):1476-1479. Dai WY,Zhuang YY.Design and application of nursing checklist for lower extremity ischemia in patients treated with arterial-venous extracorporeal membrane oxygenation[J]. Chin Nurs Res,2022,36(8):1476-1479. [24] von Bahr V,Kalzén H,Frenckner B,et al. Long-term pulmo-nary function and quality of life in adults after extracor-poreal membrane oxygenation for respiratory failure[J]. Perfu-sion,2019,34(1_suppl):49-57. [25] Gribensk A,Schneider A,Gallaher JR,et al.Posthospitalization outcomes after extracorporeal membrane oxygenation(ECMO) for COVID-19[J]. Surgery,2022,172(1):466-469. [26] Kurniawati ER,Rutjens VGH,Vranken NPA,et al.Quality of life following adult veno-venous extracorporeal membrane oxy-genation for acute respiratory distress syndrome:a systematic review[J]. Qual Life Res,2021,30(8):2123-2135. [27] Higa KC,Mayer K,Quinn C,et al.Sounding the alarm:what clinicians need to know about physical,emotional,and cogni-tive recovery after venoarterial extracorporeal membrane oxy-genation[J]. Crit Care Med,2023,51(9):1234-1245. [28] Hsieh FT,Huang GS,Ko WJ,et al.Health status and quality of life of survivors of extra corporeal membrane oxygenation:a cross-sectional study[J]. J Adv Nurs,2016,72(7):1626-1637. [29] Knudson KA,Funk M,Redeker NS,et al.An unbelievable ordeal:the experiences of adult survivors treated with extra-corporeal membrane oxygenation[J]. Aust Crit Care,2022,35(4):391-401. [30] Chen KH,Chen YT,Yeh SL,et al.Changes in quality of life and health status in patients with extracorporeal life support:a prospective longitudinal study[J]. PLoS One,2018,13(5):e0196778. [31] Chen KH,Tsai FC,Tsai CS,et al.Problems and health needs of adult extracorporeal membrane oxygenation patients follow-ing hospital discharge:A qualitative study[J]. Heart Lung,2016, 45(2):147-153. [32] Lindén VB,Lidegran MK,Frisén G,et al.ECMO in ARDS:a long-term follow-up study regarding pulmonary morphology and function and health-related quality of life[J]. Acta Anae-sthesiol Scand,2009,53(4):489-495. [33] Tiedebohl JM,DeFabio ME,Bell T,et al. ECMO survivors' quality of life and needs after discharge:a descriptive,comparative cross-sectional pilot study[J]. Intensive Crit Care Nurs,2020,59:102829. |