[1] Latronico N,Herridge M,Hopkins RO,et al.The ICM research agenda on intensive care unit-acquired weakness[J]. Intensive Care Med,2017,43(9):1270-1281. [2] LaGrone LN,Fuhs AK,Egoavil EH,et al. A global assessment of access to and use of medical information:the state of evidence-based surgery[J]. World J Surg,2018,42(2):521-531. [3] Chou SC,Baker O,Schuur JD.Changes in emergency depart-ment care intensity from 2007-16:analysis of the national hospital ambulatory medical care survey[J]. West J Emerg Med, 2020,21(2):209-216. [4] Hart NH,Crawford-Williams F,Crichton M,et al.Unmet sup-portive care needs of people with advanced cancer and their caregivers:a systematic scoping review[J]. Crit Rev Oncol He-matol,2022,176:103728. [5] 王松梅,赵亚杰,候莹鸽,等. 青年女性癌症患者生育信息需求及支持的研究进展[J]. 中华护理杂志,2022,57(14):1777-1782. Wang SM,Zhao YJ,Hou YG,et al.Research advances on fertility information needs and support for adolescent and young adult female cancer patients[J]. Chin J Nurs,2022,57(14):1777-1782. [6] Wetzig K,Mitchell M.The needs of families of ICU trauma patients:an integrative review[J]. Intensive Crit Care Nurs,2017, 41:63-70. [7] Chang PY,Chang TH,Yu JM.Perceived stress and social support needs among primary family caregivers of ICU Patients in Taiwan[J]. Heart Lung,50(4):491-498. [8] Velasco Bueno JM,Alonso-Ovies A,Heras La Calle G,et al. Main information requests of family members of patients in intensive care units[J]. Med Intensiva(Engl Ed),2018,42(6):337-345. [9] Harfield S,Davy C,Kite E,et al.Characteristics of Indigenous primary health care models of service delivery:a scoping review protocol[J]. JBI Database System Rev Implement Rep,2015,13(11):43-51. [10] Peters MDJ,Marnie C,Tricco AC,et al.Updated methodolo-gical guidance for the conduct of scoping reviews[J]. JBI Evid Synth,2020,18(10):2119-2126. [11] 胡雁,郝玉芳. 循证护理学[M]. 2版. 北京:人民卫生出版社,2018. Hu Y,Hao YF.Evidence-based nursing[M]. 2nd ed. Beijing:People's Medical Publishing House,2018. [12] Yang YH,Wu J,Xu HF,et al.Experiences and needs of pa-tients and relatives during hospitalization in an intensive care unit in China:a qualitative study[J]. J Transcult Nurs,2022,33(2):141-149. [13] Ventura Expósito L,Arreciado Marañón A.Needs and partici-pation strategies proposed by the family in the daily care of the critically ill patient[J]. Enfermería Clínica Engl Ed,2021, 31(5):294-302. [14] Nygaard AM,Haugdahl HS,Brinchmann BS,et al.Information concerning ICU patients' families in the handover-The clinicians' 《game of whispers》:a qualitative study[J]. J Clin Nurs,2020,29(19/20):3822-3834. [15] Czerwonka AI,Herridge MS,Chan LD,et al.Changing support needs of survivors of complex critical illness and their family caregivers across the care continuum:a qualitative pilot study of Towards RECOVER[J]. J Crit Care,2015,30(2):242-249. [16] Wilson ME,Kaur S,Gallo De Moraes A,et al. Important cli-nician information needs about family members in the intensive care unit[J]. J Crit Care,2015,30(6):1317-1323. [17] Nolen KB,Warren NA.Meeting the needs of family members of ICU patients[J]. Crit Care Nurs Q,2014,37(4):393-406. [18] Gaeeni M,Farahani MA,Seyedfatemi N,et al.Informational support to family members of intensive care unit patients:the perspectives of families and nurses[J]. Glob J Health Sci,2014,7(2):8-19. [19] Al-Mutair AS,Plummer V,Clerehan R,et al.Needs and expe-riences of intensive care patients' families:a Saudi qualitative study[J]. Nurs Crit Care,2014,19(3):135-144. [20] Alonso-Ovies A,álvarez J,Velayos C,et al.Expectativas de los familiares de pacientes críticos respecto a la información médica. Estudio de investigación cualitativa[J]. Rev Calid Asist,2014,29(6):325-333. [21] Bench SD,Day T,Griffiths P.Involving users in the develop-ment of effective critical care discharge information:a focus group study[J]. Am J Crit Care,2011,20(6):443-452. [22] Thornton JD,Pham K,Engelberg RA,et al.Families with limi-ted English proficiency receive less information and support in interpreted intensive care unit family conferences[J]. Crit Care Med,2009,37(1):89-95. [23] Verhaeghe ST,van Zuuren FJ,Defloor T,et al. How does in-formation influence hope in family members of traumatic coma patients in intensive care unit?[J]. J Clin Nurs,2007,16(8):1488-1497. [24] Browning G,Warren NA.Unmet needs of family members in the medical intensive care waiting room[J]. Crit Care Nurs Q,2006,29(1):86-95. [25] 李明珍,邓爱辉,吴宝玉. ICU患者家属不同阶段照护体验的质性研究[J]. 护理学杂志,2016,31(5):27-29. Li MZ,Deng AH,WU BY.Qualitative study on different stages of care experience of family members of ICU patients[J]. J Nurs Sci,2016,31(5):27-29. [26] 李知音,欧玉兰. ICU昏迷患者家属心理状态及需求的质性研究[J]. 当代护士(中旬刊),2016(12):1-3. Li ZY,Ou YL.Qualitative study on psychological state and needs of family members of coma patients in ICU[J]. Contemp Nurses,2016(12):1-3. [27] Luiz FF,Caregnato RCA,Costa MRD.Humanization in the in-tensive care:perception of family and healthcare professionals[J]. Rev Bras Enferm,2017,70(5):1040-1047. [28] Boltey EM,Wright N,Mosley EA,et al.Exploring the process of information sharing in an adult intensive care unit:an ethnographic study[J]. J Interprof Care,2022,36(2):168-176. [29] Hylock RH,Zeng XM.A blockchain framework for patient-centered health records and exchange(HealthChain):evalua-tion and proof-of-concept study[J]. J Med Internet Res,2019, 21(8):e13592. [30] Harvey MA,Davidson JE.Postintensive care syndrome:right care,right now…and later[J]. Crit Care Med,2016,44(2):381-385. [31] Calkins K,Kako P,Guttormson J.Patients' experiences of re-covery:beyond the intensive care unit and into the com-munity[J]. J Adv Nurs,2021,77(4):1867-1877. [32] Hegdari A,Sharifi M,Moghaddam AB,et al.Family partici-pation in the care of older adult patients admitted to the intensive care unit:a scoping review[J]. Geriatr Nurs,2020, 41(4):474-484. [33] Thompson Bastin ML,Short GT,Cook AM,et al.Patients' and care providers' perceptions of television-based education in the intensive care unit[J]. Am J Crit Care,2019,28(4):307-315. |