ISSN 2097-6046（网络）
ISSN 2096-7446（印刷）
CN 10-1655/R
主管：中国科学技术协会
主办：中华护理学会
中华急危重症护理杂志

中华急危重症护理杂志 ›› 2026, Vol. 7 ›› Issue (10): 1219-1221.doi: 10.3761/j.issn.2096-7446.2026.10.011

• 重症护理研究 • 上一篇    下一篇

I型神经纤维瘤病伴极重度颈椎后凸畸形与癫痫患者的护理

吴金娟1(), 马姚静1,*(), 余群飞1, 叶群1, 王曼曼1, 陶轶卿2   

  1. 1 浙江大学医学院附属第二医院护理部 杭州市 310000
    2 浙江大学医学院附属第二医院骨科 杭州市 310000
  • 收稿日期:2025-11-16 出版日期:2026-10-10 发布日期:2026-10-14
  • 通讯作者: *马姚静，E-mail：2504029@zju.edu.cn
  • 作者简介:吴金娟：女，本科，主管护师，E-mail：wuj0528@zju.edu.cn
    作者贡献声明

    吴金娟：论文撰写；马姚静、陶轶卿：病例选择与构思；余群飞：论文指导；叶群、王曼曼：论文校对

  • 基金资助:
    浙江省教育厅一般科研项目(Y202352208)

Nursing care of a patient with neurofibromatosis type 1 complicated by severe cervical kyphosis and epilepsy

WU Jinjuan1(), MA Yaojing1,*(), YU Qunfei1, YE Qun1, WANG Manman1, TAO Yiqing2   

  1. 1 Nursing Department， the Second Affiliated Hospital of Zhejiang University School of Medicine， Hangzhou 310000， China
    2 Department of Orthopedics， the Second Affiliated Hospital，Zhejiang University School of Medicine， Hangzhou 310000， China
  • Received:2025-11-16 Online:2026-10-10 Published:2026-10-14
  • Contact: *MA Yaojing，E-mail：2504029@zju.edu.cn
  • Supported by:
    General Research Projects of the Zhejiang Provincial Department of Education(Y202352208)

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摘要：

总结1例I型神经纤维瘤病所致极重度颈椎后凸畸形合并癫痫患者接受颈椎前后路联合手术的护理体会。鉴于患者术前牵引操作难度较大、癫痫急性发作风险较高，术后易出现颈部血肿、气道梗阻等护理难题，术前实施头盆环重力牵引精准化护理，构建癫痫“三维”防护体系，开展围手术期前置性风险防控工作；术后规范气道危机预警管理流程，早期识别颈部血肿情况，结合目标导向型镇痛方案与个性化抗阻训练计划，采取阶梯式协同防控并发症等举措。经 18 天个体化治疗与护理，患者顺利康复出院，随访显示恢复状况良好。

关键词: 神经纤维瘤病1型, 颈椎后凸畸形, 癫痫, 围手术期护理, 风险管理

Abstract:

To summarize the nursing experience of one patient with extremely severe cervical kyphosis secondary to neurofibromatosis type 1 complicated with epilepsy who underwent combined anterior and posterior cervical spine surgery. In view of the nursing difficulties such as great difficulty in preoperative traction，high risk of acute epileptic seizures，and easy occurrence of neck hematoma and airway obstruction，precise nursing for skull-pelvic ring gravity traction was implemented before the operation，a “three-dimensional” protection system for epilepsy was established，and proactive risk prevention and control during the perioperative period were well done. After surgery，measures such as standardized airway crisis early warning management，early identification of neck hematoma，combined with goal-oriented analgesia and personalized resistance training programs，and stepwise collaborative prevention and control of complications were adopted. After 18 days of individualized treatment and nursing，the patient successfully recovered and was discharged from the hospital，with good recovery during follow-up.

Key words: Neurofibromatosis Type 1, Cervical Kyphotic Deformity, Epilepsy, Perioperative Nursing, Risk Management