ISSN 2097-6046（网络）
ISSN 2096-7446（印刷）
CN 10-1655/R
主管：中国科学技术协会
主办：中华护理学会
中华急危重症护理杂志

中华急危重症护理杂志 ›› 2026, Vol. 7 ›› Issue (7): 849-851.doi: 10.3761/j.issn.2096-7446.2026.07.012

• 重症护理研究 • 上一篇    下一篇

巨结肠类缘病术后并发超短肠综合征伴多造口患者的护理

柳小婷1(), 王萍2, 徐亦虹1, 范婷婷1, 付真真1, 熊子菡1, 何蓓蕾1, 陈晓晖1, 章晓明1, 舒妍1,*()   

  1. 1 浙江大学医学院附属邵逸夫医院护理部 杭州市 310016
    2 浙江大学医学院附属第一医院神经外科 杭州市 310003
  • 收稿日期:2025-07-19 出版日期:2026-07-10 发布日期:2026-07-01
  • 通讯作者: *舒妍，E-mail：shuy@srrsh.com
  • 作者简介:柳小婷：女，本科，主管护师，E-mail：lxt@srrsh.com
    作者贡献声明

    柳小婷：论文撰写；王萍、徐亦虹、舒妍：文章整体把控与指导；范婷婷、付真真：论文修改；熊子菡：文献检索；何蓓蕾、陈晓晖：资料收集；章晓明：循证分析、基金支持

  • 基金资助:
    浙江省医药卫生科技计划项目(2023KY117)

Nursing care for a patient with ultra-short bowel syndrome and multiple stomas after surgery for allied disorders of Hirschsprung’s disease

LIU Xiaoting1(), WANG Ping2, XU Yihong1, FAN Tingting1, FU Zhenzhen1, XIONG Zihan1, HE Beilei1, CHEN Xiaohui1, ZHANG Xiaoming1, SHU Yan1,*()   

  1. 1 Department of Nursing， Sir Run Run Shaw Hospital，Zhejiang University School of Medicine， Hangzhou 310016， China
    2 Department of Neurosurgery， the First Affiliated Hospital，Zhejiang University School of Medicine， Hangzhou 310003， China
  • Received:2025-07-19 Online:2026-07-10 Published:2026-07-01
  • Contact: *SHU Yan，E-mail：shuy@srrsh.com
  • Supported by:
    Zhejiang Provincial Medical and Health Science and Technology Program(2023KY117)

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摘要：

总结1例先天性巨结肠类缘病术后并发超短肠综合征伴多造口患者的护理体会。针对吻合口瘘高风险、重度营养不良、造口高排量与居家过渡等难点，实施管口联动预警、阶梯序贯营养支持、个体化高排量管理、多造口协同管理及三元联动居家指导。经49 d的干预，患者顺利出院。随访1年恢复良好，体重增加，恢复部分肠道自主吸收功能。

关键词: 巨结肠, Hirschsprung病, 短肠综合征, 营养支持, 造口高排量, 危重病护理

Abstract:

This article summarized the nursing experience of a patient with congenital allied disorders of Hirschsprung’s disease（ADHD） who developed ultra-short bowel syndrome（USBS） with multiple stomas after surgery. In response to clinical challenges including a high risk of anastomotic leakage，severe malnutrition，high-output stoma，and transition to home care，the following nursing interventions were implemented，including tube-stoma linkage for dynamic monitoring，stepwise and sequential nutritional support，individualized management of high stoma output，coordinated care of multiple stomas，and a tripartite guidance model for home transition. After 49 days of tailored interventions，the patient was discharged successfully. During the one-year follow-up，the patient showed favorable recovery with weight gain and partial restoration of intestinal autonomous absorption function.

Key words: Megacolon, Hirschsprung Disease, Short Bowel Syndrome, Nutritional Support, High-Output Stoma, Critical Care Nursing