ISSN 2097-6046（网络）
ISSN 2096-7446（印刷）
CN 10-1655/R
主管：中国科学技术协会
主办：中华护理学会
中华急危重症护理杂志

中华急危重症护理杂志 ›› 2023, Vol. 4 ›› Issue (3): 242-244.doi: 10.3761/j.issn.2096-7446.2023.03.009

• 急症护理研究 • 上一篇    下一篇

先天性全身脂肪营养不良症伴低血容量性休克患儿的护理

章毅, 沈倩倩, 张欢, 徐峰, 盛美君, 潘丽丽, 陈朔晖   

  1. 310052 杭州市 国家儿童健康与疾病临床医学研究中心/浙江大学医学院附属儿童医院神经内科（章毅,张欢,徐峰,潘丽丽）,消化内科（沈倩倩）,外科监护室（盛美君）,感染管理科（陈朔晖）
  • 收稿日期:2022-05-26 出版日期:2023-03-10 发布日期:2023-03-07
  • 通讯作者: 陈朔晖,E-mail：chcsh2@zju.edu.cn
  • 作者简介:章毅：女,硕士,副主任护师,护士长,E-mail：sjkhlb@zju.edu.cn
  • 基金资助:
    浙江省中医药科技项目（2020ZB140）;浙江省卫生健康科技计划项目（2021KY763）

Nursing of a patient with congenital generalized lipodystrophy and hypovolemic shock

ZHANG Yi, SHEN Qianqian, ZHANG Huan, XU feng, SHENG Meijun, PAN Lili, CHEN Shuohui   

  • Received:2022-05-26 Online:2023-03-10 Published:2023-03-07

PDF下载

摘要： 总结1例先天性全身脂肪营养不良伴低血容量性休克患儿的护理体会。护理要点包括密切观察病情变化,采用儿童早期预警评分快速判断高危事件,早期识别低血容量性休克,并及时给予目标导向性液体复苏,按照疾病特点和病程提供个体化肠内营养支持治疗和家庭健康指导。经过16 d的治疗和护理,患儿病情好转出院,随访1年余,未发生严重并发症。

关键词: 脂质营养不良, 先天全身性, 癫痫, 休克, 营养不良, 危重病护理

Abstract: To summarize the nursing experience of a child with congenital generalized lipodystrophy accompanied by hypovolemic shock. The main points of nursing care included closely observing the changes of the condition,rapid identification of high-risk events using the Pediatric Early Warning Score,early identification of hypovolemic shock,and timely target-oriented fluid management intervention,providing individual enteral nutrition support and family health guidance according to the characteristics of the disease and disease course. After 16 days of treatment and nursing,the child was discharged from hospital. No serious complications occurred during the follow-up for more than 1 year.

Key words: Lipodystrophy, Congenital Generalized, Epilepsy, Shock, Malnutrition, Critical Care Nursing