NICU极低出生体重儿照护者出院准备服务信息化平台的构建及应用

doi:10.3761/j.issn.2096-7446.2026.03.005

Abstract

Abstract:

Objective To develop and assess an information-based discharge preparation platform for caregivers of very low birth weight infants（VLBWI） in the NICU.Methods Guided by family empowerment theory，a multifunctional，user-friendly platform was created through literature review，user needs analysis，and Delphi consultation. Sixty-two VLBWI and their caregivers in a tertiary NICU in Jiangsu Province（January-October 2024） were randomly assigned to an experimental group（n=31） and a control group（n=31）. The experimental group received information-based discharge services，while the control group received standard care. Outcomes included caregiver readiness，caregiving ability，stress，satisfaction，infant growth，breastfeeding rate，feeding intolerance，neurological development，hospital stay，cost，and unplanned readmissions.Results Significant time and intergroup effects（P<0.05） were observed in caregiver discharge readiness，caregiving ability，stress，infant weight，height，breastfeeding rate，and feeding intolerance among different time points，but there was no significant inter group effect on head circumference（P>0.05）. Simple effects analysis revealed significant differences（P<0.05） in discharge readiness，caregiving ability，stress level，satisfaction，weight，height，breastfeeding rate，feeding intolerance incidence，and behavioral neurological score between the two groups.No significant difference was found in head circumference（P>0.05）. The experimental group had lower unplanned readmission rates（P<0.05），but no significant differences were observed in hospital stay length or costs（P>0.05）.Conclusion The information-based platform improves caregiver readiness，caregiving ability，and satisfaction，reduces stress，enhances infant growth，and optimizes medical resource use.

Key words: Neonatal Intensive Care Unit, Very Low Birth Weight Infant, Discharge Planning, Informatization Platform

BIAN Liping, WANG Caoyuan, REN Yimei. The development and application of information-based discharge preparation platform for caregivers of very low birth weight infants in NICU[J]. Chinese Journal of Emergency and Critical Care Nursing, 2026, 7(3): 286-293.

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References 27

[1]	魏宁. 极低出生体重儿父母照顾能力干预方案的构建及应用[D]. 郑州: 郑州大学, 2020.
	Wei N. Construction and application of intervention program for parents’ care ability of very low birth weight infants[D]. Zhengzhou: Zhengzhou Uni-versity, 2020.
[2]	余静, 张先红, 李禄全, 等. 早产儿出院后父母应对能力问卷的编制及信度效度检验[J]. 中国护理管理, 2020, 20(3):371-378.
	Yu J, Zhang XH, Li LQ, et al. The development,validity and reliability of discharged premature infants’ parents coping ability questionnaire[J]. Chin Nurs Manag, 2020, 20(3):371-378.
[3]	Smith VC. NICU discharge preparation and transition planning:introduction[J]. J Perinatol, 2022, 42(Suppl 1):5-6. doi: 10.1038/s41372-022-01312-w
[4]	Ingram J, Blair PS, Powell JE, et al. Preparing for home:a before-and-after study to investigate the effects of a neonatal discharge package aimed at increasing parental knowledge,understanding,and confidence in caring for their preterm infant before and after discharge from hospital[M]. Southampton(UK): NIHR Journals Library, 2016.
[5]	凌雅, 章新琼, 肖娟. 以用户为中心的早产儿家庭支持护理微信小程序的开发与应用[J]. 中国护理管理, 2024, 24(3):393-397.
	Ling Y, Zhang XQ, Xiao J. Development and implementation of WeChat mini program for family support care of premature infants based on user-centered design[J]. Chin Nurs Manag, 2024, 24(3):393-397.
[6]	Richardson B, Dol J, Rutledge K, et al. Evaluation of mobile apps targeted to parents of infants in the neonatal intensive care unit:systematic app review[J]. JMIR Mhealth Uhealth, 2019, 7(4):e11620. doi: 10.2196/11620
[7]	Ghazavi Z, Minooei MS, Abdeyazdan Z, et al. Effect of family empowerment model on quality of life in children with chronic kidney diseases[J]. Iran J Nurs Midwifery Res, 2014, 19(4):371-375. pmid: 25183977
[8]	张姮. 老年慢性病人健康赋权理论框架的构建[D]. 上海: 第二军医大学, 2012.
	Zhang H. Construction of theoretical framework for health empowerment of elderly chronic patients[D]. Shanghai: Second Military Medical University, 2012.
[9]	侯文娅. 家庭参与式护理在极低出生体重早产儿中应用的效果观察[D]. 太原: 山西医科大学, 2018.
	Hou WY. Observation on the effect of family participatory nursing in very low birth weight premature infants[D]. Taiyuan: Shanxi Medical University, 2018.
[10]	Bao XL, Yu RJ, Li ZS, et al. Twenty-item behavioral neurological assessment for normal newborns in 12 cities of China[J]. Chin Med J, 1991, 104(9):742-746.
[11]	Weiss M, Johnson NL, Malin S, et al. Readiness for discharge in parents of hospitalized children[J]. J Pediatr Nurs, 2008, 23(4):282-295. doi: 10.1016/j.pedn.2007.10.005 pmid: 18638672
[12]	Chen YF, Bai JB. Reliability and validity of the Chinese version of the Readiness for Hospital Discharge Scale-Parent Form in parents of preterm infants[J]. Int J Nurs Sci, 2017, 4(2):88-93.
[13]	蒙景雯, 陈华, 李变, 等. 以家庭为中心的护理方案对早产儿家长照顾能力的影响[J]. 护理学杂志, 2017, 32(9):5-7.
	Meng JW, Chen H, Li B, et al. Effect of family-centered care on parents’ ability caring for premature infants[J]. J Nurs Sci, 2017, 32(9):5-7.
[14]	Miles MS, Funk SG, Carlson J. Parental Stressor Scale:neonatal intensive care unit[J]. Nurs Res, 1993, 42(3):148-152. pmid: 8506163
[15]	李国曦, 江逊, 王爱玲. 新生儿重症监护病房患儿父母压力源量表的汉化和信效度检验[J]. 中国医药导报, 2020, 17(8):56-59.
	Li GX, Jiang X, Wang AL. Localization and reliability and validity of parental stressor scale for children in neonatal intensive care unit[J]. China Med Her, 2020, 17(8):56-59.
[16]	钱小芳, 刘桂华, 欧萍, 等. 早产儿家长延续性护理服务满意度量表的构建与评价[J]. 中国护理管理, 2014, 14(2):141-144.
	Qian XF, Liu GH, Ou P, et al. The construction and evaluation of Continuing Care Satisfaction Scale for premature infants’ parents[J]. Chin Nurs Manag, 2014, 14(2):141-144.
[17]	Huang L, Zhao BY, Li XT, et al. Effects of an online family-focused parenting support intervention on preterm infants’ physical development and parents’ sense of competence and care ability:a randomized controlled trial[J]. Int J Nurs Stud, 2024, 149:104625. doi: 10.1016/j.ijnurstu.2023.104625
[18]	张竑, 王芬, 张媛媛, 等. 袋鼠式护理模式对早产儿智力发育、运动发育及神经发育情况的影响[J]. 中国临床研究, 2019, 32(11):1599-1601.
	Zhang H, Wang F, Zhang YY, et al. Influence of kangaroo nursing mode on the intelligence development,motor development and nerve development of premature infants[J]. Chin J Clin Res, 2019, 32(11):1599-1601.
[19]	Azzuqa A, Chuo J, Zenge J. Tele-medicine:Innovative tools for a safe transition to home in neonatal care[J]. Semin Perinatol, 2021, 45(5):151427. doi: 10.1016/j.semperi.2021.151427
[20]	刘燕, 张春丽. 母乳喂养联合益生菌对早产儿喂养耐受及胆汁淤积的影响[J]. 医学综述, 2019, 25(2):408-411,416.
	Liu Y, Zhang CL. Effect of breast feeding and probiotics on tolerance and cholestasis of preterm infants[J]. Med Recapitul, 2019, 25(2):408-411,416.
[21]	张继永, 林燕燕, 白海涛. 小于胎龄儿0-24月龄体格生长状况分析[J]. 中国全科医学, 2020, 23(32):4069-4073,4079. doi: 10.12114/j.issn.1007-9572.2020.00.522
	Zhang JY, Lin YY, Bai HT. Analysis of physical growth of small for gestational age infants at 0-24 months[J]. Chin Gen Pract, 2020, 23(32):4069-4073,4079.
[22]	Gray JE, Safran C, Davis RB, et al. Baby CareLink:using the Internet and telemedicine to improve care for high-risk infants[J]. Pediatrics, 2000, 106(6):1318-1324. pmid: 11099583
[23]	Garfield CF, Lee YS, Kim HN, et al. Supporting parents of premature infants transitioning from the NICU to home:a pilot randomized control trial of a smartphone application[J]. Internet Interv, 2016, 4(Pt 2):131-137. doi: 10.1016/j.invent.2016.05.004 pmid: 27990350
[24]	Ansari NS, Franck LS, Tomlinson C, et al. A pilot study of family-integrated care(FICare) in critically ill preterm and term infants in the NICU:FICare plus[J]. Children, 2023, 10(8):1337. doi: 10.3390/children10081337
[25]	李正中, 林梅, 黄芝蓉, 等. “互联网+护理”在早产儿延续照护中的应用研究进展[J]. 护理研究, 2022, 36(4):695-698.
	Li ZZ, Lin M, Huang ZR, et al. Research progress on the application of “Internet+nursing” in the continuous care of premature infants[J]. Chin Nurs Res, 2022, 36(4):695-698.
[26]	Zhang R, Huang RW, Gao XR, et al. Involvement of parents in the care of preterm infants:a pilot study evaluating a family-centered care intervention in a Chinese neonatal ICU[J]. Pediatr Crit Care Med, 2018, 19(8):741-747. doi: 10.1097/PCC.0000000000001586
[27]	Banerjee J, Aloysius A, Mitchell K, et al. Improving infant outcomes through implementation of a family integrated care bundle including a parent supporting mobile application[J]. Arch Dis Child Fetal Neonatal Ed, 2020, 105(2):172-177. doi: 10.1136/archdischild-2018-316435

The development and application of information-based discharge preparation platform for caregivers of very low birth weight infants in NICU

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