ISSN 2097-6046(网络)
ISSN 2096-7446(印刷)
CN 10-1655/R
主管:中国科学技术协会
主办:中华护理学会

中华急危重症护理杂志 ›› 2023, Vol. 4 ›› Issue (4): 356-358.doi: 10.3761/j.issn.2096-7446.2023.04.017

• 重症护理研究 • 上一篇    下一篇

极早发炎症性肠病患儿疾病活动期的护理

陈晓飞, 周红琴, 李美, 沈倩倩, 缪薛琴   

  1. 310052 杭州市 国家儿童健康与疾病临床医学研究中心/浙江大学医学院附属儿童医院消化内科(陈晓飞,李美,沈倩倩,缪薛琴),护理部(周红琴)
  • 收稿日期:2022-05-29 出版日期:2023-04-10 发布日期:2023-04-14
  • 通讯作者: 周红琴,E-mail:zhouhongqin@zju.edu.cn
  • 作者简介:陈晓飞:女,硕士,副主任护师,护士长,E-mail:hzxiao0914@163.com
  • 基金资助:
    浙江省医药卫生科技计划面上项目(2021KY186)

Nursing care of children with very early onset inflammatory bowel disease during the active period

CHEN Xiaofei, ZHOU Hongqin, LI Mei, SHEN Qianqian, MIAO Xueqin   

  • Received:2022-05-29 Online:2023-04-10 Published:2023-04-14

摘要: 总结20例极早发炎症性肠病患儿疾病活动期的护理。针对该组患儿发病年龄早、疾病因素影响生长发育、透壁性炎性病变易穿透肠壁形成瘘管、评估药物是否应答时肠道准备难度大、因终身性疾病家长心理压力大等问题,采取早期营养管理,改善疾病预后;规范应用生物制剂,警惕过敏性休克发生;瘘管形成与肛周病变的护理,促进瘘口愈合;完善肠道准备,协助评估治疗效果;做好出院指导和随访,提高治疗依从性等护理措施。经积极对症治疗和护理,本组患儿均好转出院。

关键词: 炎症性肠病, 生长障碍, 营养支持, 危重病护理

Abstract: To summarize the nursing care of 20 children with very early onset inflammatory bowel disease (IBD)during the active period. In response to the specific situations of patients,including the early onset of IBD,negative consequences of IBD on growth and development,the penetration of inflammatory lesions and the formation of fistulas,the difficulty of intestinal preparation when evaluating the drug response,and the high level of psychological pressure of family members due to life-long duration of IBD,the nursing measures were taken. Early nutritional management was adopted to improve the prognosis of the disease. Standardized application of biological agents and prevention of anaphylactic shock were conducted. Skin care was strengthened when fistula formed,intestinal preparation was improved to evaluate the treatment effects. The nurses also completed the health guidance and follow-up to improve treatment compliance. After active symptomatic treatment and nursing,all the children were improved and discharged.

Key words: Inflammatory Bowel Disease, Growth Disorders, Nutritional Support, Critical Care Nursing