ISSN 2097-6046（网络）
ISSN 2096-7446（印刷）
CN 10-1655/R
主管：中国科学技术协会
主办：中华护理学会
中华急危重症护理杂志

中华急危重症护理杂志 ›› 2025, Vol. 6 ›› Issue (1): 76-78.doi: 10.3761/j.issn.2096-7446.2025.01.011

• 急症护理研究 • 上一篇    下一篇

发热感染相关性癫痫综合征患儿的急救护理

夏姗姗(), 丁亚平, 沈震, 高建娣()   

  1. 310052 杭州市 国家儿童健康与疾病临床医学研究中心/浙江大学医学院附属儿童医院儿童重症监护病房（夏姗姗，丁亚平，沈震），护理部（高建娣）
  • 收稿日期:2024-04-29 出版日期:2025-01-10 发布日期:2025-01-14
  • 通讯作者: 高建娣，E-mail：zjhzgjd@163.com
  • 作者简介:夏姗姗：女，本科，副主任护师，副护士长，E-mail：xiashanshan@zju.edu.cn

Emergency nursing care of a child with febrile infection-related epilepsy syndrome

XIA Shanshan(), DING Yaping, SHEN Zhen, GAO Jiandi()   

  • Received:2024-04-29 Online:2025-01-10 Published:2025-01-14

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摘要：

总结1例发热感染相关性癫痫综合征患儿的急救护理体会。针对病情进展快且难以控制、丙泊酚输注综合征病死率高等护理难点，采取最佳呼吸支持方式改善通气；动态调整麻醉剂、规范应用生物制剂及早期启动生酮饮食控制急性期癫痫发作；应用体外膜肺氧合技术、血浆置换等措施维持脏器功能稳定，纠正丙泊酚输注综合征。经过35 d的精心治疗及护理，患儿病情稳定，渡过急性期。

关键词: 发热感染相关性癫痫综合征, 丙泊酚输注综合征, 儿童, 急救护理

Abstract:

To summarize the emergency nursing experience for a child with febrile infection-related epilepsy syndrome（FIRES）. Due to the rapid and difficult-to-control progression in FIRES，and the high mortality rate associated with propofol infusion syndrome，optimal respiratory support was implemented to improve ventilation，dynamic adjustments of anesthetics were made，biologics used according to protocols，and early initiation of a ketogenic diet was employed to control acute seizures，measures such as extracorporeal membrane oxygenation （ECMO） and plasma exchange were utilized to maintain stable organ function，propofol infusion syndrome was cor-rected. After 35 days of meticulous treatment and care，the patient’s condition stabilized，overcoming the acute phase.

Key words: Febrile Infection-Related Epilepsy Syndrome, Propofol Infusion Syndrome, Children, Emergency Nursing