eISSN 2097-6046
ISSN 2096-7446
CN 10-1655/R
Responsible Institution:China Association for Science and Technology
Sponsor:Chinese Nursing Association
Special Planning——Critical Pediatric Care

Development of a quality assessment indicator system for palliative care in pediatric intensive care units

  • ZHAO Huiyun ,
  • WU Bo ,
  • XU Xiaoying ,
  • TANG Shi
Expand
  • 1. Pediatric Intensive Care UnitXinhua Hospital,Shanghai Jiaotong University School of MedicineShanghai 200092, China
    2. Department of PediatricsWomen&Children’s Health Care Hospital of Linyi,LinyiShandong Province 276000, China
    3. Department of NursingPulmonary Hospital,Tongji UniversityShanghai 200433, China
    4. Department of NursingRenji Hospital,Shanghai Jiaotong University School of Medicine,Shanghai 200127China. *WU Bo, E-mail:wubo2019@alumni.sjtu.edu.cn

Received date: 2025-07-09

  Online published: 2026-01-06

Supported by

Xinhua Hospital Affiliated to Shanghai Jiaotong University School of Medicine:Nursing Development Program(xhlxm005)

Abstract

Objective To initially construct a quality evaluation index system for palliative care in pediatric intensive care units(PICUs),providing a basis for monitoring and managing the quality of palliative care in PICUs. Methods Based on the Donabedian theoretical framework,a literature review,expert Delphi method,and analytic hierarchy process were used to construct a quality evaluation index system for nursing care,including specific contents in structure,process,and outcome dimensions. Results Three rounds of expert consultation were conducted,with a 100% response rate for each round. The expert authority coefficients were 0.97,0.96,and 0.98,respectively,and the Kendall’s coefficient of concordance was 0.102,0.312,and 0.344(P<0.01). Ultimately,a quality evaluation index system for palliative care in PICUs was constructed,including 3 first-level indicators,11 second-level indicators,and 40 third-level indicators. Conclusion The index system ultimately formed in this study is both scientific and clinically applicable. It can be used as a reference for the quality review of palliative care,providing nurses with a clear working framework and norms,and offering quantifiable evaluation standards for exploring the effectiveness of palliative care intervention measures.

Cite this article

ZHAO Huiyun , WU Bo , XU Xiaoying , TANG Shi . Development of a quality assessment indicator system for palliative care in pediatric intensive care units[J]. Chinese Journal of Emergency and Critical Care Nursing, 2026 , 7(1) : 36 -41 . DOI: 10.3761/j.issn.2096-7446.2026.01.005

References

[1] Akard TF, Hendricks-Ferguson VL, Gilmer MJ. Pediatric palliative care nursing[J]. Ann Palliat Med, 2019, 8(Suppl 1):S39-S48.
[2] 李琳玉, 孙畅, 陈晓飞, 等. 新生儿重症监护室护士对死亡态度与安宁疗护教育需求的相关性分析[J]. 中华急危重症护理杂志, 2022, 3(5):431-436.
  Li LY, Sun C, Chen XF, et al. Correlation analysis between death attitude and hospice education needs of the nurses in neonatal intensive care unit[J]. Chin J Emerg Crit Care Nurs, 2022, 3(5):431-436.
[3] Moresco B, Moore D. Pediatric palliative care[J]. Hosp Pract (1995) 2021, 49(sup1):422-430.
[4] 蒋思珊, 成琴琴, 罗听薇, 等. 儿童安宁疗护质量评估工具的系统评价[J]. 中华护理杂志, 2025, 60(5):611-618.
  Jiang SS, Cheng QQ, Luo TW, et al. A systematic review of quality assessment tools for pediatric palliative care based on COSMlN guidelines[J]. Chin J Nurs, 2025, 60(5):611-618.
[5] Davis S, Nunn M. Palliative communication in the pediatric intensive care unit[J]. Crit Care Nurs Clin North Am, 2023, 35(3):287-294.
[6] Donabedian A. Evaluating the quality of medical care[J]. Milbank Q, 2005, 83(4):691-729.
[7] Vasli P, Karami M, AsadiParvar-Masouleh H. Pediatric palliative care for children with cancer:a concept analysis using Rodgers’ evolutionary approach[J]. World J Pediatr, 2022, 18(12):791-803.
[8] Chen L, Zhang YJ, Li C, et al. Construction of haemodialysis nursing-sensitive quality indicators based on Donabedian theory:a Delphi method study[J]. Nurs Open, 2023, 10(2):807-816.
[9] 王草源, 任义梅, 陈方圆. NICU终末期患儿安宁疗护质量评价量表的编制及信效度检验[J]. 中华急危重症护理杂志, 2024, 5(12):1081-1087.
  Wang CY, Ren YM, Chen FY. Development and psychometric tests of the Palliative Care Quality Assessment Scale in the neonatal intensive care setting[J]. Chin J Emerg Crit Care Nurs, 2024, 5(12):1081-1087.
[10] Boyden JY, Bogetz JF, Johnston EE, et al. Measuring pediatric palliative care quality:challenges and opportunities[J]. J Pain Symptom Manage, 2023, 65(5):e483-e495.
[11] Feudtner C, Beight LJ, Boyden JY, et al. Goals of care among parents of children receiving palliative care[J]. JAMA Pediatr, 2023, 177(8):800-807.
[12] Stone W, Keim-Malpass J, Cozad MJ, et al. Pediatric end-of-life care in rural America:a systematic review[J]. Am J Hosp Palliat Care, 2022, 39(9):1098-1104.
[13] Postier AC, Wolfe J, Hauser J, et al. Education in palliative and end-of-life care-pediatrics:curriculum use and dissemination[J]. J Pain Symptom Manage, 2022, 63(3):349-358.
[14] Weaver MS, Mooney-Doyle K, Kelly KP, et al. The benefits and burdens of pediatric palliative care and end-of-life research:a systematic review[J]. J Palliat Med, 2019, 22(8):915-926.
[15] Seino Y, Kurosawa H, Shiima Y, et al. End-of-life care in the pediatric intensive care unit:Survey in Japan[J]. Pediatr Int, 2019, 61(9):859-864.
[16] Constantinou G, Garcia R, Cook E, et al. Children’s unmet palliative care needs:a scoping review of parents’ perspectives[J]. BMJ Support Palliat Care, 2019, 9(4):439-450.
[17] Mishra S, Mukhopadhyay K, Tiwari S, et al. End-of-life care:consensus statement by Indian academy of pediatrics[J]. Indian Pediatr, 2017, 54(10):851-859.
[18] Levine DR, Mandrell BN, Sykes A, et al. Patients’ and parents’ needs,attitudes,and perceptions about early palliative care integration in pediatric oncology[J]. JAMA Oncol, 2017, 3(9):1214-1220.
[19] Hasson F, Keeney S, McKenna H. Research guidelines for the Delphi survey technique[J]. J Adv Nurs, 2000, 32(4):1008-1015.
[20] 商君婷, 陈燕, 赵军亚, 等. 数字化健康干预在青少年癌症患者安宁疗护中的应用进展[J]. 中华护理杂志, 2023, 58(23):2940-2944.
  Shang JT, Chen Y, Zhao JY, et al. Progress in the application of digital health interventions in the palliative care of adolescent cancer patients[J]. Chin J Nurs, 2023, 58(23):2940-2944.
Outlines

/