ISSN 2097-6046(网络)
ISSN 2096-7446(印刷)
CN 10-1655/R
主管:中国科学技术协会
主办:中华护理学会
急症护理研究

发热感染相关性癫痫综合征患儿的急救护理

  • 夏姗姗 ,
  • 丁亚平 ,
  • 沈震 ,
  • 高建娣
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  • 310052 杭州市 国家儿童健康与疾病临床医学研究中心/浙江大学医学院附属儿童医院儿童重症监护病房(夏姗姗,丁亚平,沈震),护理部(高建娣)
夏姗姗:女,本科,副主任护师,副护士长,E-mail:xiashanshan@zju.edu.cn
高建娣,E-mail:zjhzgjd@163.com

收稿日期: 2024-04-29

  网络出版日期: 2025-01-14

Emergency nursing care of a child with febrile infection-related epilepsy syndrome

  • XIA Shanshan ,
  • DING Yaping ,
  • SHEN Zhen ,
  • GAO Jiandi
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Received date: 2024-04-29

  Online published: 2025-01-14

摘要

总结1例发热感染相关性癫痫综合征患儿的急救护理体会。针对病情进展快且难以控制、丙泊酚输注综合征病死率高等护理难点,采取最佳呼吸支持方式改善通气;动态调整麻醉剂、规范应用生物制剂及早期启动生酮饮食控制急性期癫痫发作;应用体外膜肺氧合技术、血浆置换等措施维持脏器功能稳定,纠正丙泊酚输注综合征。经过35 d的精心治疗及护理,患儿病情稳定,渡过急性期。

本文引用格式

夏姗姗 , 丁亚平 , 沈震 , 高建娣 . 发热感染相关性癫痫综合征患儿的急救护理[J]. 中华急危重症护理杂志, 2025 , 6(1) : 76 -78 . DOI: 10.3761/j.issn.2096-7446.2025.01.011

Abstract

To summarize the emergency nursing experience for a child with febrile infection-related epilepsy syndrome(FIRES). Due to the rapid and difficult-to-control progression in FIRES,and the high mortality rate associated with propofol infusion syndrome,optimal respiratory support was implemented to improve ventilation,dynamic adjustments of anesthetics were made,biologics used according to protocols,and early initiation of a ketogenic diet was employed to control acute seizures,measures such as extracorporeal membrane oxygenation (ECMO) and plasma exchange were utilized to maintain stable organ function,propofol infusion syndrome was cor-rected. After 35 days of meticulous treatment and care,the patient’s condition stabilized,overcoming the acute phase.

参考文献

[1] Rachfalska N, Pietruszewski J, Paprocka J. Dramatic course of paediatric cryptogenic febrile infection-related epilepsy syndro-me with unusual chronic phase presentation:a case report with literature study[J]. Brain Sci, 2021, 11(8):1030.
[2] Serino D, Santarone ME, Caputo D, et al. Febrile infection-rela-ted epilepsy syndrome(FIRES):prevalence,impact and manage-ment strategies[J]. Neuropsychiatr Dis Treat, 2019,15:1897-1903.
[3] 毛丹丹, 胡文广. 发热感染相关性癫痫综合征研究进展[J]. 中华实用儿科临床杂志, 2022, 37(1):70-73.
  Mao DD, Hu WG. Research progress of febrile infection-related epilepsy syndrome[J]. Chin J Appl Clin Pediatr, 2022, 37(1):70-73.
[4] 潘丽丽, 章毅, 王秀玲. 重症抗N-甲基-D-天冬氨酸受体脑炎患儿的早期识别及护理[J]. 中华急危重症护理杂志, 2023, 4(7):631-634.
  Pan LL, Zhang Y, Wang XL. Early identification and nursing care of children with severe anti-N-methyl-D-aspartate receptor encephalitis[J]. Chin J Emerg, 2023, 4(7):631-634.
[5] 王营, 马燕丽, 王媛, 等. 托珠单抗成功治疗儿童发热感染相关癫痫综合征1例及文献复习[J]. 中华神经科杂志, 2022, 55(11):1277-1285.
  Wang Y, Ma YL, Wang Y, et al. A case of febrile infection-related epilepsy syndrome in children successfully treated with tocilizumab and literature review[J]. Chin J Neurol, 2022, 55(11):1277-1285.
[6] International NORSE Consensus Group. International consensus recommendations for management of New Onset Refractory Status Epilepticus(NORSE) including Febrile Infection-Related Epilepsy Syndrome(FIRES):Summary and Clinical Tools[J]. Epilepsia, 2022, 63(11):2827-2839.
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