ISSN 2097-6046（网络）
ISSN 2096-7446（印刷）
CN 10-1655/R
主管：中国科学技术协会
主办：中华护理学会
中华急危重症护理杂志

中华急危重症护理杂志 ›› 2022, Vol. 3 ›› Issue (1): 41-43.doi: 10.3761/j.issn.2096-7446.2022.01.006

• 危重儿童与新生儿护理专题 • 上一篇    下一篇

脊髓性肌萎缩症患儿行多学科协作的护理

邓海英, 胡君, 黄丽琴, 刘敏珍, 林晓霞, 林丽珍   

  1. 350001 福州市 福建医科大学附属协和医院新生儿监护室（邓海英）,儿科（胡君,黄丽琴,刘敏珍,林晓霞,林丽珍）
  • 收稿日期:2021-07-30 出版日期:2022-01-10 发布日期:2022-01-17
  • 作者简介:邓海英：女,本科,主管护师,副护士长,E-mail：34987985@qq.com

Application of multidisciplinary collaboration in the care of children with spinal muscular dystrophy

DENG Haiying, HU Jun, HUANG Liqin, LIU Minzhen, LIN Xiaoxia, LIN Lizhen   

  • Received:2021-07-30 Online:2022-01-10 Published:2022-01-17

PDF下载

摘要： 总结5例脊髓性肌萎缩症患儿行多学科协作护理的体会。护理要点：以小儿内科脊髓性肌萎缩症患儿的责任护士为主导,与本科室的神经、呼吸、康复、营养医疗专业组的专职护士协作,同时邀请营养科、康复科医师共同对患儿实施呼吸道管理、鞘内注射诺西那生钠注射液的护理、胃造瘘营养管理、家庭救护技能培训及康复训练、出院随访及延伸服务。5例患儿治疗效果良好,顺利出院。

关键词: 幼年型脊髓性肌萎缩, 多学科协作, 专科护理, 儿科护理学

Abstract: To summarize the nursing experience of multidisciplinary cooperation in 5 children with spinal muscular atrophy. Under the leadership of charge nurses for pediatric patients with spinal muscular dystrophy,cooperation of full-time nurses who are matched with medical professional groups of neurology,respiratory,rehabilitation and nutrition departments,and the participation of doctors of nutrition department and rehabilitation department,the respiratory tract management,nursing care of intrathecal injection of Nosephase sodium,nutrition management of gastrostomy,home rescue skills training and rehabilitation training,discharge follow-up were carried out for the children. Five children were successfully discharged from hospital with good treatment effect.

Key words: Intermediate Spinal Muscular Atrophy, Multidisciplinary Collaboration, Specific Nursing, Pediatric Nursing