To summarize the perioperative nursing experience of hypertrophic obstructive cardiomyopathy due to Ogden syndrome in a child. In response to the nursing challenges of complex surgery and high incidence of complications in the pediatric patient,the key points of preoperative nursing focused on reducing cardiac load. Postoperative nursing emphasized optimizing volume load and preventing low cardiac output syndrome,using cardiac pacemakers to assist in maintaining heart rhythm and preventing arrhythmias,dynamically monitoring pericardial drainage fluid and being vigilant for bleeding and pericardial tamponade,providing pain relief to improve comfort and prevent exacerbation of left ventricular outflow obstruction,and facilitating passive and active exercises to promote early cardiac recovery. After 10 days of meticulous nursing care,the patient successfully passed the critical period and was transferred to the cardiac surgery department for further specialized treatment before discharge.
DING Yaping
,
JIN Yuyu
,
NI Yan
,
ZHU Jihua
. Perioperative nursing care for a child with hypertrophic obstructive cardiomyopathy caused by Ogden syndrome[J]. Chinese Journal of Emergency and Critical Care Nursing, 2024
, 5(11)
: 1022
-1024
.
DOI: 10.3761/j.issn.2096-7446.2024.11.011
[1] Li F,Wang W,Li Y,et al.NAA10 gene related Ogden syndrome with obstructive hypertrophic cardiomyopathy:A rare case report[J]. Medicine(Baltimore),2024,103(6):e36034.
[2] Rupp S,Felimban M,Schänzer A,et al.Genetic basis of hypertrophic cardiomyopathy in children[J]. Clin Res Cardiol,2019,108(3):282-289.
[3] 余文静,高兴莲,吴佳颖. 23例心脏移植手术患儿的护理[J]. 中华护理杂志,2017,52(4):414-417.
Yu WJ,Gao XL,Wu JY.Nursing care of 23 cases undergoing pediatric heart transplantation[J]. Chin J Nurs,2017,52(4):414-417.
[4] 陆丽娟,张帆,管志敏,等. 暴发性心肌炎患者容量管理方案的制订及实践[J]. 中华急危重症护理杂志,2021,2(2):127-131.
Lu LJ,Zhang F,Guan ZM,et al.Nursing practice of fluid management in patients with fulminant myocarditis[J]. Chin J Emerg Crit Care Nurs,2021,2(2):127-131.
[5] 李晨赫,李睿. 2020美国心脏学会/美国心脏病学会肥厚型心肌病诊疗指南解读[J]. 临床外科杂志,2024,32(1):22-27.
Li CH,Li R.Interpretation of 2020 American Heart Association/American College of Cardiology Guidelines for the diagnosis and treatment of patients with hypertrophic cardiomyopathy[J]. J Clin Surg,2024,32(1):22-27.
[6] 刘喜旺,徐玮泽,舒强. 重视先天性心脏病手术后心脏康复,提高全生命周期生活质量[J]. 临床小儿外科杂志,2023,22(5):401-406.
Liu XW,Xu WZ,Shu Q.Focusing more upon cardiac rehabilitations after congenital heart disease surgery for improving life quality of whole life cycle[J]. J Clin Pediatr Surg,2023,22(5):401-406.
[7] 黄辉,刘义兰. 叙事护理临床应用的研究进展[J]. 中华护理杂志,2016,51(2):196-200.
Huang H,Liu YL.Research progress on clinical application of narrative nursing[J]. Chin J Nurs,2016,51(2):196-200.
