[1] 刘倩丽,关健. 基于数据的临床决策对无行为能力患者治疗选择的潜在意义[J]. 中国医学伦理学,2016,29(6):978-980.
Liu QL,Guan J.The potential significance of data-based decision-making to clinical choice of incapacitated patients[J]. Chin Med Ethics,2016,29(6):978-980.
[2] 刘俊荣,吴开,谢汉春. 医疗决策模式与决策主体的选择倾向研究[J]. 医学与哲学(A),2018,39(10):14-20.
Liu JR,Wu K,Xie HC.Study on medical decision-making mo-dels and decision-makers' preferences[J]. Med Philos A,2018, 39(10):14-20.
[3] 余晓,田刻平,张小红,等. 危重患者临终决策的研究现状[J]. 中国护理管理,2017,17(2):271-275.
Yu X,Tian KP,Zhang XH,et al.The research progress of end-of-life decisions among ICU patients[J]. Chin Nurs Manag,2017, 17(2):271-275.
[4] Scheunemann LP,Ernecoff NC,Buddadhumaruk P,et al.Clinician-family communication about patients' values and preferences in intensive care units[J]. JAMA Intern Med,2019,179(5):676-684.
[5] Sulmasy DP,Hughes MT,Yenokyan G,et al.The trial of ascertaining individual preferences for loved ones' role in end-of-life decisions(TAILORED) study:a randomized controlled trial to improve surrogate decision making[J]. J Pain Symptom Ma-nage,2017,54(4):455-465.
[6] Khan MW,Muehlschlegel S.Shared decision making in neurocritical care[J]. Neurol Clin,2017,35(4):825-834.
[7] Thiede E,Levi BH,Lipnick D,et al.Effect of advance care planning on surrogate decision makers' preparedness for decision making:results of a mixed-methods randomized controlled trial[J]. J Palliat Med,2021,24(7):982-993.
[8] Mendoza JL,Burns CM.‘Who Will Talk for Me?’ next of kin is not necessarily the preferred substitute decision maker:findings from an Australian intensive care unit[J]. Palliat Med, 2015, 29(4):391-392.
[9] Jox RJ,Denke E,Hamann J,et al.Surrogate decision making for patients with end-stage dementia[J]. Int J Geriatr Psychiatry,2012,27(10):1045-1052.
[10] Masuda Y,Fetters M,Shimokata H,et al.Outcomes of written living wills in Japan:a survey of the deceased ones' families[J]. Bioethics Forum,2001,17(1):41-52.
[11] Dzeng E,Colaianni A,Roland M,et al.Influence of institutional culture and policies on do-not-resuscitate decision making at the end of life[J]. JAMA Intern Med,2015,175(5):812-819.
[12] Heland M.Fruitful or futile:intensive care nurses' experiences and perceptions of medical futility[J]. Aust Crit Care,2006, 19(1):25-31.
[13] 崔娟,王云岭. 论医务社会工作本土化过程中的伦理困境及对策:以“案主自决”原则与中国本土价值观冲突为例[J]. 中国医学伦理学,2014,27(5):670-672.
Cui J,Wang YL.Ethical dilemmas and related solutions for localization of medical social work:taking conflicts between “self determination” principle and Chinese local values for example[J]. Chin Med Ethics,2014,27(5):670-672.
[14] 朱懿珍,张爽,关玉珠,等. 共享决策在ICU中的应用进展[J]. 中华护理杂志,2021,56(2):289-294.
Zhu YZ,Zhang S,Guan YZ,et al.Application progress of shared decision-making in ICU[J]. Chin J Nurs,2021,56(2):289-294.
[15] Jones TW,Newsome AS,Smith SE,et al.Interprofessional sha-red decision-making:who is at the table?[J]. Crit Care Med,2020,48(2):e158-e159.
[16] 刘梦婕,朱京慈. “不再心肺复苏”在ICU的应用进展[J]. 中华护理杂志,2016,51(5):613-617.
Liu MJ,Zhu JC.Progress on application of do-not-resuscitate orders in ICUs[J]. Chin J Nurs,2016,51(5):613-617.
[17] McKenzie MS,Auriemma CL,Olenik J,et al. An observational study of decision making by medical intensivists[J]. Crit Care Med,2015,43(8):1660-1668.
[18] Johnson SK,Bautista CA,Hong SY,et al.An empirical study of surrogates' preferred level of control over value-laden life support decisions in intensive care units[J]. Am J Respir Crit Care Med,2011,183(7):915-921.
[19] Fan SY,Hsieh JG.The experience of do-not-resuscitate orders and end-of-life care discussions among physicians[J]. Int J En-viron Res Public Health,2020,17(18):E6869.
[20] Wendler D,Rid A.Systematic review:the effect on surrogates of making treatment decisions for others[J]. Ann Intern Med,2011,154(5):336-346.
[21] Bolcic-Jankovic D,Clarridge BR,LeBlanc JL,et al. Exploring determinants of surrogate decision-maker confidence:an example from the ICU[J]. J Empir Res Hum Res Ethics,2014,9(4):76-85.
[22] Lerner JS,Li Y,Valdesolo P,et al.Emotion and decision mak-ing[J]. Annu Rev Psychol,2015,66(1):799-823.
[23] Beckstrand RL,Jenkins JB,Luthy KE,et al.Family behaviors as unchanging obstacles in end-of-life care:16-year comparative data[J]. Am J Crit Care,2020,29(4):e81-e91.
[24] Leibold A,Lassen CL,Lindenberg N,et al.Is every life worth saving:does religion and religious beliefs influence parame-dic's end-of-life decision-making? A prospective questionnaire-based investigation[J]. Indian J Palliat Care,2018,24(1):9-15.
[25] Ayeh DD,Tak HJ,Yoon JD,et al.U.S. physicians' opinions about accommodating religiously based requests for continued life-sustaining treatment[J]. J Pain Symptom Manage,2016,51(6):971-978.
[26] Anstey MH,Litton E,Jha N,et al.A comparison of the opinions of intensive care unit staff and family members of the treatment intensity received by patients admitted to an intensive care unit:a multicentre survey[J]. Aust Crit Care,2019, 32(5):378-382.
[27] Robinson J,Gott M,Ingleton C.Patient and family experiences of palliative care in hospital:what do we know? An integrative review[J]. Palliat Med,2014,28(1):18-33.
[28] Wilson ME,Krupa A,Hinds RF,et al.A video to improve patient and surrogate understanding of cardiopulmonary resuscitation choices in the ICU:a randomized controlled trial[J]. Crit Care Med,2015,43(3):621-629.
[29] Cresp SJ,Lee SF,Moss C.A framework for nurses working in partnership with substitute decision-makers for people living with advanced dementia:a discursive paper[J]. J Clin Nurs,2020:1-10.
[30] Cai XM,Robinson J,Muehlschlegel S,et al.Patient preferen-ces and surrogate decision making in neuroscience intensive care units[J]. Neurocrit Care,2015,23(1):131-141.
[31] Au SS,Roze des Ordons AL,Parsons Leigh J,et al. A multicenter observational study of family participation in ICU rounds[J]. Crit Care Med,2018,46(8):1255-1262.
[32] 张冰冰,聂琴琪,王婉洁,等. 治疗决策辅助在ICU长期机械通气病人家属中的应用效果[J]. 护理研究,2018,32(21):3453-3456.
Zhang BB,Nie QQ,Wang WJ,et al.Application effect of treatment decision support for families of ICU patients with long-term mechanical ventilation[J]. Chin Nurs Res,2018,32(21):3453-3456.
[33] Plaisance A,Witteman HO,LeBlanc A,et al. Development of a decision aid for cardiopulmonary resuscitation and invasive mechanical ventilation in the intensive care unit employing user-centered design and a wiki platform for rapid prototyping[J]. PLoS One,2018,13(2):e0191844.
