新生儿巨型脐膨出合并肺动脉高压保守治疗期的家庭支持服务实践

doi:10.3761/j.issn.2096-7446.2026.09.013

Chinese Journal of Emergency and Critical Care Nursing ›› 2026, Vol. 7 ›› Issue (9): 1108-1111.doi: 10.3761/j.issn.2096-7446.2026.09.013

• Critical Care Research • Previous Articles Next Articles

Family support service practice for a neonate with giant omphalocele complicated by pulmonary hypertension during conservative treatment

YU Jun¹(), LI Jianping¹, WU Xiaohua², CHENG Xiaoying²^,^*()

¹ Department of Neonatology， Children’s Hospital，Zhejiang University School of Medicine/National Clinical Research Center for Children and Adolescent’s Health and Diseases， Hangzhou 310053， China
² Nursing Department， Children’s Hospital，Zhejiang University School of Medicine/National Clinical Research Center for Children and Adolescent’s Health and Diseases， Hangzhou 310053， China

Received:2026-04-16 Online:2026-09-10 Published:2026-08-31
Contact: * CHENG Xiaoying，E-mail：chengxiaoying@zju.edu.cn

Abstract

Abstract:

We summarized nursing experience of family support service for a neonate with giant omphalocele complicated by pulmonary hypertension undergoing conservative treatment，which was characterized by long-term care，high home-care difficulty，and prominent family psychological issues. Key nursing points were as follows. Based on family needs assessment，the certified child life specialists（CCLS） led multidisciplinary team implemented syste-matic interventions including parent-child companionship，sibling support，and picture book healing. After 33 days of family-integrated care，parental self-efficacy improved，anxiety decreased. The dressing changes，nasogastric feeding and oxygen therapy were independently performed，leading to successful discharge. Follow-up showed good healing of the omphalocele sac with no complications，reduced anxiety behavior among family members，and return to daily life.

Key words: Giant Omphalocele, Pulmonary Hypertension, Family Support Services, Child Life Specialist

YU Jun, LI Jianping, WU Xiaohua, CHENG Xiaoying. Family support service practice for a neonate with giant omphalocele complicated by pulmonary hypertension during conservative treatment[J]. Chinese Journal of Emergency and Critical Care Nursing, 2026, 7(9): 1108-1111.

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Family support service practice for a neonate with giant omphalocele complicated by pulmonary hypertension during conservative treatment

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