ISSN 2097-6046(网络)
ISSN 2096-7446(印刷)
CN 10-1655/R
主管:中国科学技术协会
主办:中华护理学会
论著

主动脉夹层患者恐惧疾病进展心理体验的质性研究

  • 张丹丹 ,
  • 闵燕 ,
  • 黄秋霞 ,
  • 李会敏 ,
  • 袁祎凌 ,
  • 苗如婷
展开
  • 330006 南昌市 南昌大学护理学院(张丹丹,李会敏,袁祎凌,苗茹婷);南昌大学第一附属医院护理部(闵燕),心胸外科ICU(黄秋霞)
张丹丹:女,本科(硕士在读),E-mail:3252153387@qq.com
闵燕,E-mail:ndyfy00610@ncu.edu.cn

收稿日期: 2024-07-22

  网络出版日期: 2025-04-02

基金资助

江西省教育厅科学技术研究项目(GJJ2200157)

Experience of fear of disease progression in patients with aortic dissection:a qualitative study

  • ZHANG Dandan ,
  • MIN Yan ,
  • HUANG Qiuxia ,
  • LI Huimin ,
  • YUAN Yiling ,
  • MIAO Ruting
Expand
  • School of Nursing,Jiangxi Medical College,Nanchang University,Nanchang 330006,China

Received date: 2024-07-22

  Online published: 2025-04-02

摘要

目的 了解主动脉夹层患者恐惧疾病进展的真实体验,并探讨其影响因素。方法 采用目的抽样法,对2024年1月—3月南昌市某三级甲等医院心脏大血管外科收治的13例主动脉夹层患者进行半结构式深入访谈,采用Colaizzi现象学分析法整理分析资料。结果 归纳出6个主题:复发恐惧、刺激因素、疾病不确定感、恐惧情绪影响日常生活、应对方式、支持系统。结论 医护人员应重视主动脉夹层患者的恐惧心理体验,改善患者认知、降低疾病不确定感,提高自我效能,促进应对的积极转变,满足其健康管理需求,减轻复发恐惧情绪,从而改善患者的生活质量。

本文引用格式

张丹丹 , 闵燕 , 黄秋霞 , 李会敏 , 袁祎凌 , 苗如婷 . 主动脉夹层患者恐惧疾病进展心理体验的质性研究[J]. 中华急危重症护理杂志, 2025 , 6(4) : 403 -408 . DOI: 10.3761/j.issn.2096-7446.2025.04.003

Abstract

Objective To understand the actual experience of fear of disease progression among patients with aortic dissection and explore its influencing factors. Methods Through the purposive sampling approach,semi-structured in-depth interviews were conducted with 13 patients with aortic dissection admitted to the cardiovascular surgery department of a tertiary class A hospital in Nanchang City from January to March 2024. Data were analyzed using Colaizzi’s phenomenological method. Results Six themes were summarized,including fear of recurrence,stimulating factors,illness uncertainty,impact of fear on daily life,coping styles,and support systems. Conclusion Medical staff should pay attention to the psychological experience of fear of patients with aortic dissection,enhance patients’ cognition,reduce disease uncertainty,improve self-efficacy,promote positive changes in coping,meet their health management needs,reduce the fear of recurrence,and thereby enhance their quality of life.

参考文献

[1] Stombaugh DK, Mangunta VR. Aortic dissection[J]. Anesthesiol Clin, 2022, 40(4):685-703.
[2] Wang WG, Duan WX, Xue Y, et al. Clinical features of acute aortic dissection from the registry of aortic dissection in China[J]. J Thorac Cardiovasc Surg, 2014, 148(6):2995-3000.
[3] Chen YB, Ouyang TY, Yin Y, et al. The prognosis of patients with postoperative hyperglycemia after Stanford type A aortic dissection surgery and construction of prediction model for postoperative hyperglycemia[J]. Front Endocrinol, 2023,14:1063496.
[4] D’Oria M, Sen I, Day CN, et al. Burden and causes of readmissions following initial discharge after aortic syndromes[J]. J Vasc Surg, 2021, 73(3):836-843.e3.
[5] Peikert ML, Inhestern L, Krauth KA, et al. Fear of progression in parents of childhood cancer survivors:prevalence and associated factors[J]. J Cancer Surviv, 2022, 16(4):823-833.
[6] 张旭. 癌症幸存者复发恐惧模型的构建与验证研究[D]. 沈阳: 中国医科大学, 2022.
  Zhang X. Construction and validation of recurrence fear model of cancer survivors[D]. Shenyang: China Medical University, 2022.
[7] Reinken DN, Reed SM. Mishel’s uncertainty in illness theory:informing nursing diagnoses and care planning[J]. Int J Nurs Knowl, 2023, 34(4):316-324.
[8] Parker PA, Davis JW, Latini DM, et al. Relationship between illness uncertainty,anxiety,fear of progression and quality of life in men with favourable-risk prostate cancer undergoing active surveillance[J]. BJU Int, 2016, 117(3):469-477.
[9] 熊娟娟, 秦静雯, 龚开政. 心脏病患者疾病进展恐惧的研究进展[J]. 中国护理管理, 2022, 22(1):147-150.
  Xiong JJ, Qin JW, Gong KZ. Research progress on fear of disease progression in patients with heart disease[J]. Chin Nurs Manag, 2022, 22(1):147-150.
[10] 刘明. Colaizzi七个步骤在现象学研究资料分析中的应用[J]. 护理学杂志, 2019, 34(11):90-92.
  Liu M. Using an example to illustrate Colaizzi’s phenomenological data analysis method[J]. J Nurs Sci, 2019, 34(11):90-92.
[11] Eranki A, Wilson-Smith A, Williams ML, et al. Quality of life following surgical repair of acute type A aortic dissection:a systematic review[J]. J Cardiothorac Surg, 2022, 17(1):118.
[12] Epstein RM. Facing epistemic and complex uncertainty in serious illness:the role of mindfulness and shared mind[J]. Patient Educ Couns, 2021, 104(11):2635-2642.
[13] Tauber NM, O’Toole MS, Dinkel A, et al. Effect of psychological intervention on fear of cancer recurrence:a systematic review and meta-analysis[J]. J Clin Oncol, 2019, 37(31):2899-2915.
[14] Melchior H, Büscher C, Thorenz A, et al. Self-efficacy and fear of cancer progression during the year following diagnosis of breast cancer[J]. Psychooncology, 2013, 22(1):39-45.
[15] Giesler JM, Weis J. Patient competence in the context of cancer:its dimensions and their relationships with coping,coping self-efficacy,fear of progression,and depression[J]. Support Care Cancer, 2021, 29(4):2133-2143.
[16] 柳书悦, 陈梅先, 何凤英, 等. 基于自我效能理论的原发性肝癌术后病人恐惧疾病进展影响因素分析[J]. 护理研究, 2021, 35(6):1056-1060.
  Liu SY, Chen MX, He FY, et al. Analysis of influencing factors of fear of progression in patients with primary liver cancer after surgery based on self-efficacy theory[J]. Chin Nurs Res, 2021, 35(6):1056-1060.
[17] Zhang L, Shi YM, Deng J, et al. The effect of health literacy,self-efficacy,social support and fear of disease progression on the health-related quality of life of patients with cancer in China:a structural equation model[J]. Health Qual Life Outcomes, 2023, 21(1):75.
[18] Hall DL, Levine BJ, Jeter E, et al. A spotlight on avoidance coping to manage fear of recurrence among breast cancer survivors in an eHealth intervention[J]. J Behav Med, 2022, 45(5):771-781.
[19] 徐玉兰, 黄辉, 曹青, 等. 电子健康干预手段在慢性病患者管理中应用的范围综述[J]. 护理学杂志, 2021, 36(23):96-101.
  Xu YL, Huang H, Cao Q, et al. Scoping review of e-Health applied in management of patients with chronic diseases[J]. J Nurs Sci, 2021, 36(23):96-101.
[20] Lee JR, Segal C, Howitt J, et al. Lived experiences of people with or at risk for aortic dissection:a qualitative assessment[J]. Semin Vasc Surg, 2022, 35(1):78-87.
文章导航

/