总结1例玉型神经纤维瘤病累及消化道合并大出血患者的护理体会。针对患者术前多发消化道间质瘤大出血后止血困难、术后并发症发生率高及全身皮肤纤维瘤等问题，采取如下护理措施：基于Blatchford评分系统的再出血风险评估指导出血预警护理；加强皮肤护理，预防纤维瘤瘤体破损；术后落实十二指肠瘘的风险管理；实施个体化心理护理联合中医疗法促进术后胃瘫康复；出院后做好延续性护理。 患者术后第32天顺利出院，随访3个月，体重增加，恢复良好。

To summarize the nursing experience of a patient with type I neurofibromatosis involving the gastrointestinal tract combined with hemorrhage. In response to the preoperative hemostasis difficulties for multiple gastrointestinal mesenchymal tumor hemorrhage，high incidence of postoperative complications and systemic dermatofibroma，the following nursing measures were implemented：assessing the risk of rebleeding based on the Brachford scoring system to guide early warning care，paying attention to skin care to avoid breakage of the neurofibroma tumor，implementing postoperative risk management of duodenal fistula，implementing individualized psychological care combined with Chinese traditional medicine to promote postoperative gastroparesis，continuous nursing after discharge. The patient was successfully discharged from the hospital 32 days after surgery，and her weight was increased and recovered well during the follow-up of 3 months.